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Many of us are carers now and so this category is for carers to share their thoughts and experiences

TOPIC: Looking for others who are/were caregivers for spouses

Looking for others who are/were caregivers for spouses 2 weeks 1 day ago #3168122

  • jeffreybbb
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Maybe now is a good time to get back to trying to support others who are/were caregivers, in whatever way we can
The following user(s) said Well Said: jennilin, JennieR62

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Looking for others who are/were caregivers for spouses 1 week 20 hours ago #3173686

  • JennieR62
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I was my husband's 24/7 home carer for 15years before the health authorities decided he was no longer able to live in his own home with me plus sadly he was making me very ill, so it was with a heavy heart and much soul searching And crying, I agreed he needed much more specialist nursing care in a nursing home that I alone could not give.
It has been almost a year now that I made that decision, and the guilt is slowly easing but he is very well looked after in the home I have no complaint but it's still sad to see him just laying there with no quality of life and just tired all the time.
He has the two worst two mental health diseases - Parkinson's and dementia.
I found buzz to be a lifesaver for me and still do, it's a way of connecting to other people whether they be in the same situation as you or for other reasons they find themselves housebound and cut off from the outside world.

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Looking for others who are/were caregivers for spouses 6 days 2 hours ago #3175124

  • welshlion
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jennilin wrote: Your goals are admirable well done and working for free in your desire to help is amazing thank goodness for people like you ... I can see why you would be unsure of the point I am trying to make because I am a mere mortal and like lots of others struggle with the system .. I'm so glad you don't struggle... obviously it's my fault I am inept x


Read the last few posts and was stunned to see someone describe themselves as "inept". Whilst there are plenty of suggestions on how carers can fight the system there is no easy/straightforward solution as no 2 situations are identical. Social services appear to have been supplied with a "one size fits all" set of guidelines and until there's more flexibility in the system we will all continue to struggle.

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To be born Welsh is not to be born with a silver spoon in your mouth, but with a song in your heart.
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